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soficrow
Unregistered User
(12/18/02 4:18 pm)
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Some references with incidence rates
Celeste - I posted these on December 6 - my Dec 4 post lost the footnotes - so these were entered manually. _ Lanie

A)        Quote: "Frequency: In the US: The reported incidence of FMD
> in adults is 0.6% via angiography and 1.1% via autopsy."
> Title: "Fibromuscular Dysplasia (Carotid Artery)." Source: eMedicine
> Journal, March 22 2002, Volume 3, Number ). Quote: (The FMD
> incidence rate is stated as follows): "Reported figures (of FMD) in
> adults range between 0.6% by angiography and 1.1% at autopsy."
> Title: "Case report of fibromuscular dysplasia presenting as stroke
> in a 16-year-old boy." Source: Medline. PMID: 10334397 [PubMed -
> indexed for MEDLINE] Found at: www.ncbi.nlm.nih.gov/htbin-
> post/Entrez/query?db=m&form=6&Dopt=r&uid=99265566
> (B)        "Incidental fibromuscular dysplasia in potential renal
> donors: long-term clinical follow-up." AH Cragg, TP Smith, BH
> Thompson, TP Maroney, AW Stanson, GT Shaw, DW Hunter and ST Cochran;
> Department of Radiology, University of Iowa Hospitals, Iowa City
> 52242. Radiology, Vol 172, 145-147, Copyright © 1989 by Radiological
> Society of North America.
> (C)        )"Incidence of donor renal fibromuscular dysplasia: does it
> justify routine angiography?" Andreoni KA, Weeks SM, Gerber DA, Fair
> JH, Mauro MA, McCoy L, Scott L, Johnson MW. Division of
> Transplantation, Department of Surgery, University of North Carolina
> at Chapel Hill, Chapel Hill, North Carolina 27599, USA.
> Transplantation 2002; 73: 1112-6.
> (D)        "Arteriographic Detection of Renovascular Disease in
> Potential Renal Donors: Incidence and Effect on Donor Surgery."
> Edward Neymark, MD, Jeanne M. LaBerge, MD, Ryutaro Hirose, MD,
> Juliet S. Melzer, MD, Robert K. Kerlan, Jr, MD, Mark W. Wilson, MD
> and Roy L. Gordon, MD. From the Departments of Radiology (E.N.,
> J.M.L., R.K.K., M.W.W., R.L.G.) and Surgery (R.H., J.S.M.),
> University of California, San Francisco, 505 Parnassus Ave, San
> Francisco, CA 94143-0628. From the 1998 RSNA scientific assembly.
> Received November 20, 1998; revision requested January 11, 1999;
> final revision received June 18; accepted July 21. J.M.L.
> (Radiology. 2000;214:755-760.) © RSNA, 2000
> radiology.rsnajnls.org/
> (E)        "Live donor nephrectomy in patients with fibromuscular
> dysplasia of the renal arteries." Indudhara R, Kenney, Bueschen AJ,
> Burns JR. Department of Surgery, University of Alabama at
> Birmingham, USA. PMID: 10458340 [PubMed - indexed for MEDLINE] From
> LWWonline: Lippencott Williams and Wilkins.
> (F)       
> (1) "Incidence of donor renal fibromuscular dysplasia: does it
> justify routine angiography?" Transplantation 2002; 73: 1112-6.
> (2) "Kidney transplantation: the use of living donors with renal
> artery lesions."
> Nahas WC, Lucon AM, Mazzucchi E, Scafuri AG, Neto ED, Ianhez LE,
> Arap S.,
> Unidade de Transplantes Renais do Hospital das Clinicas da Faculdade
> de Medicina da Universidade de Sao Paulo, Brazil. PMID: 9751328
> [PubMed - indexed for MEDLINE]
> Urol 1998 Oct;160(4):1244-7
> (3) "Live donor nephrectomy in patients with fibromuscular dysplasia
> of the renal arteries." Indudhara R, Kenney, Bueschen AJ, Burns JR.
> Department of Surgery, University of Alabama at Birmingham, USA.
> PMID: 10458340 [PubMed - indexed for MEDLINE] LWW Online
> (4) Quote: "(fibromuscular dysplasia) was diagnosed after biopsy..."
> Source: Spring 2002 Issue #9 Impact News. Quote: "…described a
> young adult (who had had a stroke)… Although there was no
> angiographic evidence of an arterial anomaly, microscopic
> examination revealed underlying fibromuscular dysplasia"
> Source: "Sudden neck movement and cervical artery dissection." John
> W. Norris, Vadim Beletsky, Zurab G. Nadareishvili, on behalf of the
> Canadian Stroke Consortium. CMAJ * JULY 11, 2000; 163 (1)
> (5) Quote: "In fibromuscular dysplasia, stenosis was underestimated
> in 33% of the cases (using IV DSA as compared with intraarterial
> angiography)." "Renal artery stenosis: evaluation with intravenous
> digital subtraction angiography." Radiology, Vol 160, 713-715,
> Copyright © 1986 by Radiological Society of North America. Also,
> see: "Fibromuscular dysplasia of renal arteries: comparison of
> intravenous digital subtraction angiography with conventional
> angiography." Quote: "These poor results, due to poor spatial
> resolution and subtraction artifacts inherent in the IV-DSA system,
> warrant careful interpretation of negative examinations and further
> evaluation of high risk patients." Illescas FF, Braun SD, Cohan RH,
> Sussman SK, Saeed M, Dunnick NR. Department of Radiology, Montreal
> General Hospital, Quebec. PMID: 2971048 [PubMed - indexed for
> MEDLINE]
> (6) ibid (1).
> (7) "Living Renal Donors: Optimizing the Imaging Strategy—Decision-
> and Cost-effectiveness Analysis" Authors: Ylian S. Liem, MSc, Marc
> C. J. M. Kock, MD, Jan N. M. Ijzermans, MD, PhD, Willem Weimar, MD,
> PhD, Karen Visser, PhD and M.G. Myriam Hunink, MD, PhD. From the
> Program for the Assessment of Radiological Technology (ART Program)
> and the Departments of Epidemiology and Biostatistics (Y.S.L.,
> M.C.J.M.K., K.V., M.G.M.H.), Radiology (Y.S.L., M.C.J.M.K., K.V.,
> M.G.M.H.), Surgery (J.N.M.I.), and Internal Medicine (W.W.), Erasmus
> MC Rotterdam, Rm EE21-40a, Dr Molewaterplein 50, 3015 GE Rotterdam,
> the Netherlands; and Department of Health Policy and Management,
> Harvard School of Public Health, Boston, Mass (M.G.M.H.). From the
> 2001 RSNA scientific assembly. Received November 26, 2001; revision
> requested February 7, 2002; revision received March 21; accepted May
> 13. Supported in part by the Foundation for Health Care Efficiency
> Research and by the Netherlands Organization for Scientific
> Research. Address correspondence to M.G.M.H. (e-mail:
> hunink@e...).
> (8) Date: 1979. Quote: "…neither renovascular atherosclerosis nor
> fibromuscular dysplasia proved to be an absolute contraindication to
> transplantation." Source: "Results and significance of angiography
> in potential kidney donors." Radiology, Vol 133, 45-47, Copyright ©
> 1979 by Radiological Society of North America.
> (9) Date: 1981. Quote: "The results indicate that all forms of
> fibromuscular dysplasia are progressive and have variable rates of
> progression." Source: "Progression of renal artery fibromuscular
> dysplasia in 42 patients as seen on angiography." Authors: V
> Goncharenko, AJ Gerlock Jr, MI Shaff and JW Hollifield. Radiology,
> Vol 139, 45-51, Copyright © 1981 by Radiological Society of North
> America

soficrow
Unregistered User
(12/18/02 4:21 pm)
Reply
FMD incidence
Also note : Bofinger's article on the home page here refers to FMD incidence up to 1-in-8 - which is 12.5%

And, Jocee recently posted an article from India which cites an FMD incidence rate of up to 2.5% found in the carotid.

All of these findings are way way over rare disease rates - they are indicative of a pandemic.

Cheers, Lanie

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